jenbrea - Tweet Data Analysis
Tweets Analysis - Keyword: @jenbrea
Published April 9, 2023
Overview
Tweets covering
8 days
Latest tweet was on
2023-03-26
Earliest tweet was on
2023-03-17
Total number of tweets analysed
92
Average age of authors' accounts
8 years
Summarization
The tweets discuss various topics related to chronic illnesses, particularly Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and COVID-19 long-haul symptoms. They mention the importance of patient activism and finding rational modes of therapy to manage symptoms. Some tweets also discuss the biases and bullying that surround ME/CFS, including death threats against doctors and researchers. One tweet also asks about an MRI and neurosurgeon for late-stage Lyme and CFS with cranial cervical instability (CCI).
Topic Modeling
- Inspiring women in the field of health and disease diagnosis
- Awareness of Long COVID and related topics
- Therapy and treatment for Myalgic Encephalomyelitis
- Connecting with others and finding information about diseases like EDS and CFS
- The challenges and biases present in the healthcare industry for patients with ME/CFS
Emotional Analysis
The tweets express a range of emotions, from gratitude and admiration for inspiring women like @jenbrea, to frustration and anger towards doctors and the medical community for their lack of understanding and treatment options for conditions like #LongCOVID and #MyalgicEncephalomyelitis. There is also a sense of hope and empowerment in the advocacy work being done by patients and activists, but also a recognition of the ongoing challenges and biases they face from within the medical community and society at large. Finally, there is a sense of personal struggle and determination to find answers and treatment options, as well as a desire to share information and support others in similar situations.
Trend Analysis
1. Long COVID/Long Covid Awareness Month (#LongCOVID #CovidLong), with a focus on finding answers for undiagnosed conditions, including Myalgic Encephalomyelitis (#MECFS #MyalgicEncephalomyelitis) and proper modes of therapy/treatment. 2. Activism and advocacy within the ME/CFS community, including mentions of patient activism, community leaders, and charities. 3. Personal experiences with ME/CFS and related conditions, including discussions on immune system triggers, dysautonomic issues, and nutrient deficiencies. 4. References to specific individuals and resources within the ME/CFS community, such as @jenbrea, @MEActNet, and the Unrest film (@unrestfilm). 5. Criticisms of the medical community's handling of ME/CFS, including issues with guidelines (such as those created by NICE), bullying/threats towards doctors and researchers, and the need for patient-centered care.
Disclaimer: The text analysis on twtdata.com, powered by OpenAI, does not represent the views of twtdata.com or its affiliates. The analysis is for informational purposes only and not an endorsement of any viewpoint.
Types of Tweets
Number of Retweets
57
61% of total
Number of Original tweets
0
0% of total
Number of tweets that were Quotes
6
6% of total
Number of tweets that were Replies
34
36% of total
Number of tweets that contain Hashtags
45
48% of total
Number of tweets that contain Mentions
92
100% of total
Devices Used to Tweet
Top 5 Devices
| Source | Count |
|---|---|
| Twitter Web App | 35 |
| Twitter for Android | 35 |
| Twitter for iPhone | 14 |
| Twitter for iPad | 5 |
| CFS Ambassadors Bot | 3 |
Device Distribution
Top 10 Accounts by Followers
| Username | Name | Bio | Followers count |
|---|---|---|---|
| NataliaHodgins | Natalia | Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle | 6,429 |
| Dakota_150 | Dakota | ME/CFS, Dysautonomia & POTS Awareness | Long COVID Ally | Health Equity Advocate | 5,963 |
| Dazza70Smith | Darren Smith 🇬🇧♿️ | “Promoting Positive Disabilty Awareness” Words to change the world so it becomes a place of Dignity and Respect for All. Always Smiling Forever Thankful💜🙏🤗♿️ | 5,314 |
| x3r0gxx | _ 🐀 | federation of plague rats against forced mass infection 🐀🐀🐀 🏴 | 5,074 |
| christina4hope | Christina | ME/CFS ,Fibromyalgia , lyme Boriliose,MCS ,Hearing loss ect….. | 3,664 |
| moniquedhooghe | monique d'hooghe ♿ (they, she) | army brat & ardent anarcho-pacifist 💘 getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice ♿ | 3,454 |
| renesugar | Rene Sugar | - | 2,401 |
| TraceyN02015171 | Tracey Nolan | - | 2,302 |
| AliceOutThere | Alice Lewis | MyalgicEncephalomyelitis—2 many lives lost—ruined—stolen. Outrageous neglect & medical MIStreatment—by our govts. 🆘 SHAME on them 🧐 Fight back ‼️ 🆘 pwME | 2,259 |
| oliviaahliv | Liv | San Francisco Native, COVID long hauler who had to get back on Elons Twitter #LongCovid | 2,158 |
Top 10 Accounts by Friends
| Username | Name | Bio | Followers count |
|---|---|---|---|
| Dakota_150 | Dakota | ME/CFS, Dysautonomia & POTS Awareness | Long COVID Ally | Health Equity Advocate | 6,114 |
| x3r0gxx | _ 🐀 | federation of plague rats against forced mass infection 🐀🐀🐀 🏴 | 5,428 |
| renesugar | Rene Sugar | - | 5,001 |
| moniquedhooghe | monique d'hooghe ♿ (they, she) | army brat & ardent anarcho-pacifist 💘 getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice ♿ | 4,999 |
| HarLoppar | Achelle | prof en cpge bio-géol, né à 337 ppmv 🥬 😷 | 4,993 |
| christina4hope | Christina | ME/CFS ,Fibromyalgia , lyme Boriliose,MCS ,Hearing loss ect….. | 4,634 |
| buckleydebbie | Deb | - | 4,336 |
| Dazza70Smith | Darren Smith 🇬🇧♿️ | “Promoting Positive Disabilty Awareness” Words to change the world so it becomes a place of Dignity and Respect for All. Always Smiling Forever Thankful💜🙏🤗♿️ | 3,456 |
| TraceyN02015171 | Tracey Nolan | - | 3,009 |
| elizabuf | Devin Nunes' Cabrito Fella | * she/her/y'all * antifa captain * expat southern gurl * #BeKind * #MakeGoodTrouble * Jorts said he loves me too! * word nerd + avid bibliophile * | 1,771 |
Most Active Users
| Username | Bio | Number of tweets |
|---|---|---|
| moniquedhooghe | army brat & ardent anarcho-pacifist 💘 getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice ♿ | 28 |
| batteredoldbook | Hello. I'm not a doctor. I'm @ahelluvabird and @JustaDoctorMoon. | 27 |
| elizabuf | * she/her/y'all * antifa captain * expat southern gurl * #BeKind * #MakeGoodTrouble * Jorts said he loves me too! * word nerd + avid bibliophile * | 5 |
| Szyzygy2 | Researcher, MBA, anthropologist, strategist, student of uncertainty, evidence, history, chronic illness, curiosity ...& all things imperfect and perfectable | 3 |
| mecfsambassador | A community of Ambassadors and Advocates helping connect patients and their families to resources and support! | 3 |
| SEPfieldPatient | - | 2 |
| renesugar | - | 2 |
| x3r0gxx | federation of plague rats against forced mass infection 🐀🐀🐀 🏴 | 2 |
| Konsularcraig | - | 1 |
| LizMEActGA | Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS | 1 |
Tweets Per Day
Top 10 Tweets by Retweets
| ID | Text | Retweet count |
|---|---|---|
| 1638221977038082048 | @scrippsnews An excellent list featuring inspiring women -- I would add @jenbrea. She talks about what to do when you have a disease that doctors can't diagnose. It's especially timely … | 3 |
| 1636695715308007428 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird I wonder if you … | 1 |
| 1637070728687230978 | #ApresJ20 #CovidLong #LongCovidAwarenessMonth 🙏🙏🙏@jenbrea ❤️ https://t.co/SRo2xRsOPz | 1 |
| 1637107724138823682 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But, fundamentally, this … | 1 |
| 1637622568231288835 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 Next year; when … | 1 |
| 1637305281167208448 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But from a … | 0 |
| 1637303807229952000 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 Am I going … | 0 |
| 1637301690180198400 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 It's not possible … | 0 |
| 1637106152189165568 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 And the opposing … | 0 |
| 1637104216060706816 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird It is very strange … | 0 |
Top 10 Tweets by Likes
| ID | Text | Like count |
|---|---|---|
| 1638221977038082048 | @scrippsnews An excellent list featuring inspiring women -- I would add @jenbrea. She talks about what to do when you have a disease that doctors can't diagnose. It's especially timely … | 10 |
| 1637070728687230978 | #ApresJ20 #CovidLong #LongCovidAwarenessMonth 🙏🙏🙏@jenbrea ❤️ https://t.co/SRo2xRsOPz | 3 |
| 1638233872608403463 | @AnnabelSchleut2 @GabbyKlein1 @CatEye0611 @PeonyLeaves905 @velogubbed @jenbrea @cherylbenson @AliceOutThere @postersandme @TurnItUp4ME @oslersweb @TheOldLostRoad @ssppeerroo "Rational mode of therapy".... never thought we would still be waiting for Drs to implement that. To … | 3 |
| 1639692917051621378 | @symptomodyssee War Fink nicht auch in der Doku von @jenbrea ? | 3 |
| 1637305281167208448 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But from a … | 1 |
| 1638806179492265987 | @ClairElle__4 If you go to @jenbrea Twitter and search EDS, it can lead you to a lot of information that may connect some dots!! ⚫️ | 1 |
| 1638723132239536131 | @x3r0gxx @karenlubell @D_Bone @jenbrea It's a relapsing-remitting progressive disease, but there's no way to predict how fast it will progress or how long remissions will last. Certainly calming the immune … | 1 |
| 1638716704439279617 | @x3r0gxx @karenlubell @D_Bone @jenbrea My cholesterol levels used to respond very well to treating MCAS, unfortunately my MCAS is severe and is progressing rapidly. Nutrient deficiencies are unfortunately not addressable … | 1 |
| 1638715159953776641 | @Szyzygy2 @karenlubell @D_Bone @jenbrea Dealt with my cholesterol by calming down my MCAS & dealing with nutrient deficiencies, both of which were triggering dysautonomic issues as well | 1 |
| 1638698542545121280 | @karenlubell @D_Bone Could be due to simple MCAS driven inflammation too, which would improve with (the right) neurosurgery as @jenbrea has described. | 1 |
Top Languages Used
Top 10 Hashtags
| Hashtag | Count |
|---|---|
| #mecfs | 29 |
| #pwme | 11 |
| #longcovid | 8 |
| #mespine | 4 |
| #millionsmissing | 2 |
| #myalgicencephalomyelitis | 2 |
| #ai | 2 |
| #eds | 2 |
| #heds | 2 |
| #covidー19 | 2 |
Top 10 Mentions
| Mention | Count |
|---|---|
| @jenbrea | 92 |
| @meactnet | 29 |
| @unrestfilm | 28 |
| @owasow | 28 |
| @meassociation | 28 |
| @paulgarnerwoof | 27 |
| @manvbrain | 27 |
| @nymag | 27 |
| @profvrr | 27 |
| @nicecomms | 27 |
Wordcloud of Tweets
Emoji Analysis
Average emojis per tweet:
47
Emojis Used
| Emoji | Count | Emoji Text |
|---|---|---|
| 🙏 | 10 | folded_hands |
| 😲 | 5 | astonished_face |
| ☂️ | 4 | umbrella |
| 👉 | 2 | backhand_index_pointing_right |
| 😄 | 2 | grinning_face_with_smiling_eyes |
| 💀 | 2 | skull |
| ❤️ | 2 | red_heart |
| ⚫ | 1 | black_circle |
| 👋 | 1 | waving_hand |
| 💜 | 1 | purple_heart |
Emoji Groups
| Emoji Group | Count |
|---|---|
| Smileys & Emotion | 24 |
| People & Body | 14 |
| Travel & Places | 4 |
| Symbols | 2 |
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