Tweets Analysis - Keyword: @jenbrea

Overview

Total number of tweets analysed

92

Earliest tweet was on

2023-03-17

Latest tweet was on

2023-03-26

Tweets covering

8 days

Average age of authors' accounts

8 years


Summarization

The tweets discuss various topics related to chronic illnesses, particularly Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and COVID-19 long-haul symptoms. They mention the importance of patient activism and finding rational modes of therapy to manage symptoms. Some tweets also discuss the biases and bullying that surround ME/CFS, including death threats against doctors and researchers. One tweet also asks about an MRI and neurosurgeon for late-stage Lyme and CFS with cranial cervical instability (CCI).

Topic Modeling

  1. Inspiring women in the field of health and disease diagnosis
  2. Awareness of Long COVID and related topics
  3. Therapy and treatment for Myalgic Encephalomyelitis
  4. Connecting with others and finding information about diseases like EDS and CFS
  5. The challenges and biases present in the healthcare industry for patients with ME/CFS

Emotional Analysis

The tweets express a range of emotions, from gratitude and admiration for inspiring women like @jenbrea, to frustration and anger towards doctors and the medical community for their lack of understanding and treatment options for conditions like #LongCOVID and #MyalgicEncephalomyelitis. There is also a sense of hope and empowerment in the advocacy work being done by patients and activists, but also a recognition of the ongoing challenges and biases they face from within the medical community and society at large. Finally, there is a sense of personal struggle and determination to find answers and treatment options, as well as a desire to share information and support others in similar situations.

Trend Analysis

1. Long COVID/Long Covid Awareness Month (#LongCOVID #CovidLong), with a focus on finding answers for undiagnosed conditions, including Myalgic Encephalomyelitis (#MECFS #MyalgicEncephalomyelitis) and proper modes of therapy/treatment. 2. Activism and advocacy within the ME/CFS community, including mentions of patient activism, community leaders, and charities. 3. Personal experiences with ME/CFS and related conditions, including discussions on immune system triggers, dysautonomic issues, and nutrient deficiencies. 4. References to specific individuals and resources within the ME/CFS community, such as @jenbrea, @MEActNet, and the Unrest film (@unrestfilm). 5. Criticisms of the medical community's handling of ME/CFS, including issues with guidelines (such as those created by NICE), bullying/threats towards doctors and researchers, and the need for patient-centered care.

Disclaimer: The text analysis on twtdata.com, powered by OpenAI, does not represent the views of twtdata.com or its affiliates. The analysis is for informational purposes only and not an endorsement of any viewpoint.

Types of Tweets

Number of Retweets

57

Percentage of total tweets

61%

Number of Original tweets

0

Percentage of total tweets

0%

Number of tweets that contain Mentions

92

Percentage of total tweets

100%

Number of tweets that were Replies

34

Percentage of total tweets

36%

Number of tweets that were Quotes

6

Percentage of total tweets

6%

Number of tweets that contain Hashtags

45

Percentage of total tweets

48%


Top 5 devices used to tweet

Source Count
Twitter Web App 35
Twitter for Android 35
Twitter for iPhone 14
Twitter for iPad 5
CFS Ambassadors Bot 3

What devices were used to tweet


Top 10 accounts with highest followers count

Username Name Bio Followers count
NataliaHodgins Natalia Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle 6,429
Dakota_150 Dakota ME/CFS, Dysautonomia & POTS Awareness | Long COVID Ally | Health Equity Advocate 5,963
Dazza70Smith Darren Smith ๐Ÿ‡ฌ๐Ÿ‡งโ™ฟ๏ธ โ€œPromoting Positive Disabilty Awarenessโ€ Words to change the world so it becomes a place of Dignity and Respect for All. Always Smiling Forever Thankful๐Ÿ’œ๐Ÿ™๐Ÿค—โ™ฟ๏ธ 5,314
x3r0gxx _ ๐Ÿ€ federation of plague rats against forced mass infection ๐Ÿ€๐Ÿ€๐Ÿ€ ๐Ÿด 5,074
christina4hope Christina ME/CFS ,Fibromyalgia , lyme Boriliose,MCS ,Hearing loss ectโ€ฆ.. 3,664
moniquedhooghe monique d'hooghe โ™ฟ (they, she) army brat & ardent anarcho-pacifist ๐Ÿ’˜ getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice โ™ฟ 3,454
renesugar Rene Sugar - 2,401
TraceyN02015171 Tracey Nolan - 2,302
AliceOutThere Alice Lewis MyalgicEncephalomyelitisโ€”2 many lives lostโ€”ruinedโ€”stolen. Outrageous neglect & medical MIStreatmentโ€”by our govts. ๐Ÿ†˜ SHAME on them ๐Ÿง Fight back โ€ผ๏ธ ๐Ÿ†˜ pwME 2,259
oliviaahliv Liv San Francisco Native, COVID long hauler who had to get back on Elons Twitter #LongCovid 2,158

Top 10 accounts with highest friends count

Username Name Bio Followers count
Dakota_150 Dakota ME/CFS, Dysautonomia & POTS Awareness | Long COVID Ally | Health Equity Advocate 6,114
x3r0gxx _ ๐Ÿ€ federation of plague rats against forced mass infection ๐Ÿ€๐Ÿ€๐Ÿ€ ๐Ÿด 5,428
renesugar Rene Sugar - 5,001
moniquedhooghe monique d'hooghe โ™ฟ (they, she) army brat & ardent anarcho-pacifist ๐Ÿ’˜ getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice โ™ฟ 4,999
HarLoppar Achelle prof en cpge bio-gรฉol, nรฉ ร  337 ppmv ๐Ÿฅฌ ๐Ÿ˜ท 4,993
christina4hope Christina ME/CFS ,Fibromyalgia , lyme Boriliose,MCS ,Hearing loss ectโ€ฆ.. 4,634
buckleydebbie Deb - 4,336
Dazza70Smith Darren Smith ๐Ÿ‡ฌ๐Ÿ‡งโ™ฟ๏ธ โ€œPromoting Positive Disabilty Awarenessโ€ Words to change the world so it becomes a place of Dignity and Respect for All. Always Smiling Forever Thankful๐Ÿ’œ๐Ÿ™๐Ÿค—โ™ฟ๏ธ 3,456
TraceyN02015171 Tracey Nolan - 3,009
elizabuf Devin Nunes' Cabrito Fella * she/her/y'all * antifa captain * expat southern gurl * #BeKind * #MakeGoodTrouble * Jorts said he loves me too! * word nerd + avid bibliophile * 1,771

Most active users

Username Bio Number of tweets
moniquedhooghe army brat & ardent anarcho-pacifist ๐Ÿ’˜ getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice โ™ฟ 28
batteredoldbook Hello. I'm not a doctor. I'm @ahelluvabird and @JustaDoctorMoon. 27
elizabuf * she/her/y'all * antifa captain * expat southern gurl * #BeKind * #MakeGoodTrouble * Jorts said he loves me too! * word nerd + avid bibliophile * 5
Szyzygy2 Researcher, MBA, anthropologist, strategist, student of uncertainty, evidence, history, chronic illness, curiosity ...& all things imperfect and perfectable 3
mecfsambassador A community of Ambassadors and Advocates helping connect patients and their families to resources and support! 3
SEPfieldPatient - 2
renesugar - 2
x3r0gxx federation of plague rats against forced mass infection ๐Ÿ€๐Ÿ€๐Ÿ€ ๐Ÿด 2
Konsularcraig - 1
LizMEActGA Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS 1

Tweets per day


Top 10 tweets with highest Retweet count

ID Text Retweet count
1638221977038082048 @scrippsnews An excellent list featuring inspiring women -- I would add @jenbrea. She talks about what to do when you have a disease that doctors can't diagnose. It's especially timely as ppl struggle to find answers for #LongCOVID. @TEDTalks @MEActNet #MECFS https://t.co/0BnwwS1D33 3
1636695715308007428 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird I wonder if you didn't get the joke? I'm cosplaying The Doctor at his most ridiculous, but I'm sitting on the Iron Throne. How can it be that simple truth beats warfare and power games? I guess it's like water seeping through rocks or the silence before the oncoming storm. https://t.co/tYB6IIc64b 1
1637070728687230978 #ApresJ20 #CovidLong #LongCovidAwarenessMonth ๐Ÿ™๐Ÿ™๐Ÿ™@jenbrea โค๏ธ https://t.co/SRo2xRsOPz 1
1637107724138823682 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But, fundamentally, this is now a very simple matter: ๐™„ ๐™๐™–๐™ซ๐™š ๐™ฉ๐™ง๐™ž๐™š๐™™ ๐™ฉ๐™ค ๐™ง๐™š๐™ฅ๐™ค๐™ง๐™ฉ ๐™๐™–๐™ง๐™ข ๐™›๐™ค๐™ง 7 ๐™ฎ๐™š๐™–๐™ง๐™จ. But it is not possible and it never really has been. I will found my recovery movie โ˜‚๏ธ on this premise, because, as awful as it is, it is the truth. 1
1637622568231288835 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 Next year; when I finish my recovery movieโ˜‚๏ธ I will have suffered the evil horseshit surrounding #MEcfs for 40 years. I will endeavour to take every drop of poison, hatred and hostility I've received during this time and transform it all back into love.๐Ÿ™ Bye. #pwme #LongCovid https://t.co/KMkfOZC8Kx 1
1637305281167208448 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But from a recovery perspective, such information is gold dust. Because it underlines the conclusion that patient activism is just another tar pit that unwary #pwme can fall into... And get stuck. For years. I would not be 100% well now had I not dumped my advocacy work... 0
1637303807229952000 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 Am I going to to wait for @davidtuller1? Well of course not!! Seriously; Why would I give a fig about anything David Tuller thinks or says about #MEcfs?! The guy gave out advice to me, before finding out what was actually happening! It's total crap. 0
1637301690180198400 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 It's not possible to report harm. How can this be part of a recovery movie? Especially one that's supposed to be a positive uplifting experience for #pwme? Well, look at this thread. The lesson for #MEcfs patients here is DON'T WAIT! Don't wait for activists to address abuse! 0
1637106152189165568 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 And the opposing biases in #MEcfs are founded on pre-conceptions. 0
1637104216060706816 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird It is very strange here. Above, @davidtuller1, thought to give me advice, before he'd even asked about my situation. That's the wrong way around, surely? 0

Top 10 tweets with highest Like count

ID Text Like count
1638221977038082048 @scrippsnews An excellent list featuring inspiring women -- I would add @jenbrea. She talks about what to do when you have a disease that doctors can't diagnose. It's especially timely as ppl struggle to find answers for #LongCOVID. @TEDTalks @MEActNet #MECFS https://t.co/0BnwwS1D33 10
1637070728687230978 #ApresJ20 #CovidLong #LongCovidAwarenessMonth ๐Ÿ™๐Ÿ™๐Ÿ™@jenbrea โค๏ธ https://t.co/SRo2xRsOPz 3
1638233872608403463 @AnnabelSchleut2 @GabbyKlein1 @CatEye0611 @PeonyLeaves905 @velogubbed @jenbrea @cherylbenson @AliceOutThere @postersandme @TurnItUp4ME @oslersweb @TheOldLostRoad @ssppeerroo "Rational mode of therapy".... never thought we would still be waiting for Drs to implement that. To know what rational mode of therapy looks like for #MyalgicEncephalomyelitis see the ME ICPRIMER at https://t.co/7LkLWSacjW 3
1639692917051621378 @symptomodyssee War Fink nicht auch in der Doku von @jenbrea ? 3
1637305281167208448 @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But from a recovery perspective, such information is gold dust. Because it underlines the conclusion that patient activism is just another tar pit that unwary #pwme can fall into... And get stuck. For years. I would not be 100% well now had I not dumped my advocacy work... 1
1638806179492265987 @ClairElle__4 If you go to @jenbrea Twitter and search EDS, it can lead you to a lot of information that may connect some dots!! โšซ๏ธ 1
1638723132239536131 @x3r0gxx @karenlubell @D_Bone @jenbrea It's a relapsing-remitting progressive disease, but there's no way to predict how fast it will progress or how long remissions will last. Certainly calming the immune system by eliminating triggers is the best way to limit progression and achieve remission, that's always the goal 1
1638716704439279617 @x3r0gxx @karenlubell @D_Bone @jenbrea My cholesterol levels used to respond very well to treating MCAS, unfortunately my MCAS is severe and is progressing rapidly. Nutrient deficiencies are unfortunately not addressable for the same reason. 1
1638715159953776641 @Szyzygy2 @karenlubell @D_Bone @jenbrea Dealt with my cholesterol by calming down my MCAS & dealing with nutrient deficiencies, both of which were triggering dysautonomic issues as well 1
1638698542545121280 @karenlubell @D_Bone Could be due to simple MCAS driven inflammation too, which would improve with (the right) neurosurgery as @jenbrea has described. 1

Top 3 Languages Used In Tweets


Top 10 Hashtags used

Hashtag Count
#mecfs 29
#pwme 11
#longcovid 8
#mespine 4
#millionsmissing 2
#myalgicencephalomyelitis 2
#ai 2
#eds 2
#heds 2
#covidใƒผ19 2

Top 10 Hashtags Used In Tweets

Top 10 mentions

Mention Count
@jenbrea 92
@meactnet 29
@unrestfilm 28
@owasow 28
@meassociation 28
@paulgarnerwoof 27
@manvbrain 27
@nymag 27
@profvrr 27
@nicecomms 27

Top 10 mentions

Wordcloud of Tweets


Emojis

Average number of emojis used per tweet

47

Emojis used in tweets

Emoji Count Emoji Text
๐Ÿ™ 10 folded_hands
๐Ÿ˜ฒ 5 astonished_face
โ˜‚๏ธ 4 umbrella
๐Ÿ‘‰ 2 backhand_index_pointing_right
๐Ÿ˜„ 2 grinning_face_with_smiling_eyes
๐Ÿ’€ 2 skull
โค๏ธ 2 red_heart
โšซ 1 black_circle
๐Ÿ‘‹ 1 waving_hand
๐Ÿ’œ 1 purple_heart

Emojis groups

Emoji Group Count
Smileys & Emotion 24
People & Body 14
Travel & Places 4
Symbols 2