Tweets Analysis - Keyword: @jenbrea
Overview
Total number of tweets analysed
92
Earliest tweet was on
2023-03-17
Latest tweet was on
2023-03-26
Tweets covering
8 days
Average age of authors' accounts
8 years
Summarization
The tweets discuss various topics related to chronic illnesses, particularly Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and COVID-19 long-haul symptoms. They mention the importance of patient activism and finding rational modes of therapy to manage symptoms. Some tweets also discuss the biases and bullying that surround ME/CFS, including death threats against doctors and researchers. One tweet also asks about an MRI and neurosurgeon for late-stage Lyme and CFS with cranial cervical instability (CCI).
Topic Modeling
- Inspiring women in the field of health and disease diagnosis
- Awareness of Long COVID and related topics
- Therapy and treatment for Myalgic Encephalomyelitis
- Connecting with others and finding information about diseases like EDS and CFS
- The challenges and biases present in the healthcare industry for patients with ME/CFS
Emotional Analysis
The tweets express a range of emotions, from gratitude and admiration for inspiring women like @jenbrea, to frustration and anger towards doctors and the medical community for their lack of understanding and treatment options for conditions like #LongCOVID and #MyalgicEncephalomyelitis. There is also a sense of hope and empowerment in the advocacy work being done by patients and activists, but also a recognition of the ongoing challenges and biases they face from within the medical community and society at large. Finally, there is a sense of personal struggle and determination to find answers and treatment options, as well as a desire to share information and support others in similar situations.
Trend Analysis
1. Long COVID/Long Covid Awareness Month (#LongCOVID #CovidLong), with a focus on finding answers for undiagnosed conditions, including Myalgic Encephalomyelitis (#MECFS #MyalgicEncephalomyelitis) and proper modes of therapy/treatment. 2. Activism and advocacy within the ME/CFS community, including mentions of patient activism, community leaders, and charities. 3. Personal experiences with ME/CFS and related conditions, including discussions on immune system triggers, dysautonomic issues, and nutrient deficiencies. 4. References to specific individuals and resources within the ME/CFS community, such as @jenbrea, @MEActNet, and the Unrest film (@unrestfilm). 5. Criticisms of the medical community's handling of ME/CFS, including issues with guidelines (such as those created by NICE), bullying/threats towards doctors and researchers, and the need for patient-centered care.
Types of Tweets
Number of Retweets
57
Percentage of total tweets
61%
Number of Original tweets
0
Percentage of total tweets
0%
Number of tweets that contain Mentions
92
Percentage of total tweets
100%
Number of tweets that were Replies
34
Percentage of total tweets
36%
Number of tweets that were Quotes
6
Percentage of total tweets
6%
Number of tweets that contain Hashtags
45
Percentage of total tweets
48%
Top 5 devices used to tweet
Source | Count |
---|---|
Twitter Web App | 35 |
Twitter for Android | 35 |
Twitter for iPhone | 14 |
Twitter for iPad | 5 |
CFS Ambassadors Bot | 3 |
What devices were used to tweet
Top 10 accounts with highest followers count
Username | Name | Bio | Followers count |
---|---|---|---|
NataliaHodgins | Natalia | Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle | 6,429 |
Dakota_150 | Dakota | ME/CFS, Dysautonomia & POTS Awareness | Long COVID Ally | Health Equity Advocate | 5,963 |
Dazza70Smith | Darren Smith ๐ฌ๐งโฟ๏ธ | โPromoting Positive Disabilty Awarenessโ Words to change the world so it becomes a place of Dignity and Respect for All. Always Smiling Forever Thankful๐๐๐คโฟ๏ธ | 5,314 |
x3r0gxx | _ ๐ | federation of plague rats against forced mass infection ๐๐๐ ๐ด | 5,074 |
christina4hope | Christina | ME/CFS ,Fibromyalgia , lyme Boriliose,MCS ,Hearing loss ectโฆ.. | 3,664 |
moniquedhooghe | monique d'hooghe โฟ (they, she) | army brat & ardent anarcho-pacifist ๐ getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice โฟ | 3,454 |
renesugar | Rene Sugar | - | 2,401 |
TraceyN02015171 | Tracey Nolan | - | 2,302 |
AliceOutThere | Alice Lewis | MyalgicEncephalomyelitisโ2 many lives lostโruinedโstolen. Outrageous neglect & medical MIStreatmentโby our govts. ๐ SHAME on them ๐ง Fight back โผ๏ธ ๐ pwME | 2,259 |
oliviaahliv | Liv | San Francisco Native, COVID long hauler who had to get back on Elons Twitter #LongCovid | 2,158 |
Top 10 accounts with highest friends count
Username | Name | Bio | Followers count |
---|---|---|---|
Dakota_150 | Dakota | ME/CFS, Dysautonomia & POTS Awareness | Long COVID Ally | Health Equity Advocate | 6,114 |
x3r0gxx | _ ๐ | federation of plague rats against forced mass infection ๐๐๐ ๐ด | 5,428 |
renesugar | Rene Sugar | - | 5,001 |
moniquedhooghe | monique d'hooghe โฟ (they, she) | army brat & ardent anarcho-pacifist ๐ getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice โฟ | 4,999 |
HarLoppar | Achelle | prof en cpge bio-gรฉol, nรฉ ร 337 ppmv ๐ฅฌ ๐ท | 4,993 |
christina4hope | Christina | ME/CFS ,Fibromyalgia , lyme Boriliose,MCS ,Hearing loss ectโฆ.. | 4,634 |
buckleydebbie | Deb | - | 4,336 |
Dazza70Smith | Darren Smith ๐ฌ๐งโฟ๏ธ | โPromoting Positive Disabilty Awarenessโ Words to change the world so it becomes a place of Dignity and Respect for All. Always Smiling Forever Thankful๐๐๐คโฟ๏ธ | 3,456 |
TraceyN02015171 | Tracey Nolan | - | 3,009 |
elizabuf | Devin Nunes' Cabrito Fella | * she/her/y'all * antifa captain * expat southern gurl * #BeKind * #MakeGoodTrouble * Jorts said he loves me too! * word nerd + avid bibliophile * | 1,771 |
Most active users
Username | Bio | Number of tweets |
---|---|---|
moniquedhooghe | army brat & ardent anarcho-pacifist ๐ getting arrested trying to end nuclear weapons, depleted uranium munitions & wars in general pro social justice โฟ | 28 |
batteredoldbook | Hello. I'm not a doctor. I'm @ahelluvabird and @JustaDoctorMoon. | 27 |
elizabuf | * she/her/y'all * antifa captain * expat southern gurl * #BeKind * #MakeGoodTrouble * Jorts said he loves me too! * word nerd + avid bibliophile * | 5 |
Szyzygy2 | Researcher, MBA, anthropologist, strategist, student of uncertainty, evidence, history, chronic illness, curiosity ...& all things imperfect and perfectable | 3 |
mecfsambassador | A community of Ambassadors and Advocates helping connect patients and their families to resources and support! | 3 |
SEPfieldPatient | - | 2 |
renesugar | - | 2 |
x3r0gxx | federation of plague rats against forced mass infection ๐๐๐ ๐ด | 2 |
Konsularcraig | - | 1 |
LizMEActGA | Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS | 1 |
Tweets per day
Top 10 tweets with highest Retweet count
ID | Text | Retweet count |
---|---|---|
1638221977038082048 | @scrippsnews An excellent list featuring inspiring women -- I would add @jenbrea. She talks about what to do when you have a disease that doctors can't diagnose. It's especially timely as ppl struggle to find answers for #LongCOVID. @TEDTalks @MEActNet #MECFS https://t.co/0BnwwS1D33 | 3 |
1636695715308007428 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird I wonder if you didn't get the joke? I'm cosplaying The Doctor at his most ridiculous, but I'm sitting on the Iron Throne. How can it be that simple truth beats warfare and power games? I guess it's like water seeping through rocks or the silence before the oncoming storm. https://t.co/tYB6IIc64b | 1 |
1637070728687230978 | #ApresJ20 #CovidLong #LongCovidAwarenessMonth ๐๐๐@jenbrea โค๏ธ https://t.co/SRo2xRsOPz | 1 |
1637107724138823682 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But, fundamentally, this is now a very simple matter: ๐ ๐๐๐ซ๐ ๐ฉ๐ง๐๐๐ ๐ฉ๐ค ๐ง๐๐ฅ๐ค๐ง๐ฉ ๐๐๐ง๐ข ๐๐ค๐ง 7 ๐ฎ๐๐๐ง๐จ. But it is not possible and it never really has been. I will found my recovery movie โ๏ธ on this premise, because, as awful as it is, it is the truth. | 1 |
1637622568231288835 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 Next year; when I finish my recovery movieโ๏ธ I will have suffered the evil horseshit surrounding #MEcfs for 40 years. I will endeavour to take every drop of poison, hatred and hostility I've received during this time and transform it all back into love.๐ Bye. #pwme #LongCovid https://t.co/KMkfOZC8Kx | 1 |
1637305281167208448 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But from a recovery perspective, such information is gold dust. Because it underlines the conclusion that patient activism is just another tar pit that unwary #pwme can fall into... And get stuck. For years. I would not be 100% well now had I not dumped my advocacy work... | 0 |
1637303807229952000 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 Am I going to to wait for @davidtuller1? Well of course not!! Seriously; Why would I give a fig about anything David Tuller thinks or says about #MEcfs?! The guy gave out advice to me, before finding out what was actually happening! It's total crap. | 0 |
1637301690180198400 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 It's not possible to report harm. How can this be part of a recovery movie? Especially one that's supposed to be a positive uplifting experience for #pwme? Well, look at this thread. The lesson for #MEcfs patients here is DON'T WAIT! Don't wait for activists to address abuse! | 0 |
1637106152189165568 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 And the opposing biases in #MEcfs are founded on pre-conceptions. | 0 |
1637104216060706816 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird It is very strange here. Above, @davidtuller1, thought to give me advice, before he'd even asked about my situation. That's the wrong way around, surely? | 0 |
Top 10 tweets with highest Like count
ID | Text | Like count |
---|---|---|
1638221977038082048 | @scrippsnews An excellent list featuring inspiring women -- I would add @jenbrea. She talks about what to do when you have a disease that doctors can't diagnose. It's especially timely as ppl struggle to find answers for #LongCOVID. @TEDTalks @MEActNet #MECFS https://t.co/0BnwwS1D33 | 10 |
1637070728687230978 | #ApresJ20 #CovidLong #LongCovidAwarenessMonth ๐๐๐@jenbrea โค๏ธ https://t.co/SRo2xRsOPz | 3 |
1638233872608403463 | @AnnabelSchleut2 @GabbyKlein1 @CatEye0611 @PeonyLeaves905 @velogubbed @jenbrea @cherylbenson @AliceOutThere @postersandme @TurnItUp4ME @oslersweb @TheOldLostRoad @ssppeerroo "Rational mode of therapy".... never thought we would still be waiting for Drs to implement that. To know what rational mode of therapy looks like for #MyalgicEncephalomyelitis see the ME ICPRIMER at https://t.co/7LkLWSacjW | 3 |
1639692917051621378 | @symptomodyssee War Fink nicht auch in der Doku von @jenbrea ? | 3 |
1637305281167208448 | @JustaDoctorMoon @PaulGarnerWoof @ManvBrain @NYMag @MEAssociation @profvrr @NICEComms @nytimes @ProfRobHoward @HenrikVogt @socialhealthnet @jenbrea @MEActNet @Reuters @StanfordMed @MrTopple @owasow @liverpoolpost @TomKindlon @unrestfilm @WesselyS @CMonaghanSNP @Stanford @OpenMedF @drphilhammond @ahelluvabird @davidtuller1 But from a recovery perspective, such information is gold dust. Because it underlines the conclusion that patient activism is just another tar pit that unwary #pwme can fall into... And get stuck. For years. I would not be 100% well now had I not dumped my advocacy work... | 1 |
1638806179492265987 | @ClairElle__4 If you go to @jenbrea Twitter and search EDS, it can lead you to a lot of information that may connect some dots!! โซ๏ธ | 1 |
1638723132239536131 | @x3r0gxx @karenlubell @D_Bone @jenbrea It's a relapsing-remitting progressive disease, but there's no way to predict how fast it will progress or how long remissions will last. Certainly calming the immune system by eliminating triggers is the best way to limit progression and achieve remission, that's always the goal | 1 |
1638716704439279617 | @x3r0gxx @karenlubell @D_Bone @jenbrea My cholesterol levels used to respond very well to treating MCAS, unfortunately my MCAS is severe and is progressing rapidly. Nutrient deficiencies are unfortunately not addressable for the same reason. | 1 |
1638715159953776641 | @Szyzygy2 @karenlubell @D_Bone @jenbrea Dealt with my cholesterol by calming down my MCAS & dealing with nutrient deficiencies, both of which were triggering dysautonomic issues as well | 1 |
1638698542545121280 | @karenlubell @D_Bone Could be due to simple MCAS driven inflammation too, which would improve with (the right) neurosurgery as @jenbrea has described. | 1 |
Top 3 Languages Used In Tweets
Top 10 Hashtags used
Hashtag | Count |
---|---|
#mecfs | 29 |
#pwme | 11 |
#longcovid | 8 |
#mespine | 4 |
#millionsmissing | 2 |
#myalgicencephalomyelitis | 2 |
#ai | 2 |
#eds | 2 |
#heds | 2 |
#covidใผ19 | 2 |
Top 10 Hashtags Used In Tweets
Top 10 mentions
Mention | Count |
---|---|
@jenbrea | 92 |
@meactnet | 29 |
@unrestfilm | 28 |
@owasow | 28 |
@meassociation | 28 |
@paulgarnerwoof | 27 |
@manvbrain | 27 |
@nymag | 27 |
@profvrr | 27 |
@nicecomms | 27 |
Top 10 mentions
Wordcloud of Tweets
Emojis
Average number of emojis used per tweet
47
Emojis used in tweets
Emoji | Count | Emoji Text |
---|---|---|
๐ | 10 | folded_hands |
๐ฒ | 5 | astonished_face |
โ๏ธ | 4 | umbrella |
๐ | 2 | backhand_index_pointing_right |
๐ | 2 | grinning_face_with_smiling_eyes |
๐ | 2 | skull |
โค๏ธ | 2 | red_heart |
โซ | 1 | black_circle |
๐ | 1 | waving_hand |
๐ | 1 | purple_heart |
Emojis groups
Emoji Group | Count |
---|---|
Smileys & Emotion | 24 |
People & Body | 14 |
Travel & Places | 4 |
Symbols | 2 |